{"id":192,"date":"2024-11-21T14:27:55","date_gmt":"2024-11-21T13:27:55","guid":{"rendered":"https:\/\/cannabisante.org\/?p=192"},"modified":"2024-11-21T14:45:59","modified_gmt":"2024-11-21T13:45:59","slug":"les-10-propositions-cles-du-manifeste-de-la-coalition-cannabisante-pour-permettre-un-acces-durable-au-cannabis-medical-en-france","status":"publish","type":"post","link":"https:\/\/cannabisante.org\/index.php\/2024\/11\/21\/les-10-propositions-cles-du-manifeste-de-la-coalition-cannabisante-pour-permettre-un-acces-durable-au-cannabis-medical-en-france\/","title":{"rendered":"Les 10 propositions cl\u00e9s du manifeste de la coalition CannabiSant\u00e9 pour permettre un acc\u00e8s durable au cannabis m\u00e9dical en France\u00a0"},"content":{"rendered":"\n

Communiqu\u00e9 de presse, Paris, le 14 novembre 2024<\/p>\n\n\n\n

La coalition CannabiSant\u00e9, compos\u00e9e de patients, professionnels de sant\u00e9 et experts engag\u00e9s dans l’exp\u00e9rimentation du cannabis m\u00e9dical en France, publie aujourd\u2019hui un manifeste d\u00e9taillant des propositions concr\u00e8tes pour garantir un acc\u00e8s p\u00e9renne, s\u00e9curis\u00e9 et structur\u00e9 au cannabis m\u00e9dical pour les patients fran\u00e7ais. Alors que l\u2019exp\u00e9rimentation actuelle doit prendre fin au 1\u1d49\u02b3 janvier 2025, le manifeste appelle les pouvoirs publics \u00e0 agir de toute urgence<\/strong> pour ne pas priver pr\u00e8s de 2000 patients des b\u00e9n\u00e9fices av\u00e9r\u00e9s de ce traitement innovant.<\/p>\n\n\n\n

Depuis son lancement il y a plus de trois ans, l\u2019exp\u00e9rimentation du cannabis m\u00e9dical en France a permis \u00e0 des milliers de patients souffrant de pathologies graves et invalidantes \u2014 pour lesquelles les traitements classiques se r\u00e9v\u00e8lent insuffisants \u2014 d\u2019am\u00e9liorer leur qualit\u00e9 de vie et de soulager leurs sympt\u00f4mes. La publication de ce manifeste intervient dans un contexte d\u2019inqui\u00e9tude croissante \u00e0 l\u2019approche de la fin de l\u2019exp\u00e9rimentation. Les patients se retrouvent dans une situation d\u2019incertitude face \u00e0 la menace de perdre l\u2019acc\u00e8s \u00e0 ce traitement essentiel pour eux. Mettre fin \u00e0 cette option th\u00e9rapeutique aujourd\u2019hui serait une r\u00e9gression majeure pour la sant\u00e9 publique.<\/p>\n\n\n\n

Afin de garantir la continuit\u00e9 de cette prise en charge et d\u2019assurer un acc\u00e8s encadr\u00e9 au cannabis m\u00e9dical, la coalition CannabiSant\u00e9 \u00e9met 10 propositions autour de 5 enjeux pour structurer l\u2019acc\u00e8s au cannabis m\u00e9dical en France :<\/p>\n\n\n\n

1\u1d49\u02b3 Enjeu : Garantir la prise en charge p\u00e9renne et s\u00e9curis\u00e9e de traitements personnalis\u00e9s pour tous les patients susceptibles d\u2019y avoir recours<\/strong><\/h6>\n\n\n\n

\u25a0 Proposition 1 : Promouvoir le bon usage du cannabis m\u00e9dical en mettant en place un livret de bon usage \u00e9labor\u00e9 par les industriels et valid\u00e9 par l\u2019ANSM, les associations de patients et les soci\u00e9t\u00e9s savantes, \u00e0 destination des patients ; en mettant \u00e0 disposition un carnet de suivi unique quelles que soient les 5 indications cliniques retenues. 
\u25a0Proposition 2 : Faciliter la formation des professionnels de sant\u00e9 et inclure dans les orientations pluriannuelles prioritaires de d\u00e9veloppement professionnel continu la prescription du cannabis \u00e0 usage m\u00e9dical et l\u2019accompagnement des patients concern\u00e9s. \u00c9tendre \u00e0 l\u2019ensemble des personnels soignants les efforts de formation destin\u00e9s actuellement aux seuls m\u00e9decins et pharmaciens, en particulier par la formation initiale en inscrivant la formation dans les parcours universitaires.<\/p>\n\n\n\n

2\u1d49 Enjeu : D\u00e9finir un parcours de sant\u00e9 adapt\u00e9 aux patients relevant du cannabis \u00e0 usage m\u00e9dical<\/strong><\/h6>\n\n\n\n

\u25a0 Proposition 3 : Organiser la prise en charge pluriprofessionnelle par cannabis \u00e0 usage m\u00e9dical et d\u00e9finir les parcours de sant\u00e9 des patients \u00e9ligibles dans les 5 indications en allouant des moyens aux structures hospitali\u00e8res et de ville d\u00e9di\u00e9es.
\u25a0 Proposition 4 : Faciliter l\u2019acc\u00e8s \u00e0 des professionnels de sant\u00e9 form\u00e9s en encourageant les interfaces ville\/h\u00f4pital et en favorisant la coordination des professionnels de sant\u00e9, en particulier au sein des CPTS. <\/p>\n\n\n\n

3\u1d49 Enjeu : Encourager la recherche et le d\u00e9veloppement clinique en vie r\u00e9elle<\/strong><\/h6>\n\n\n\n

\u25a0 Proposition 5 : \u00c9valuer les crit\u00e8res d\u2019efficacit\u00e9 du cannabis \u00e0 usage m\u00e9dical, sa s\u00e9curit\u00e9 d\u2019emploi en s\u2019aidant du cadre de la recherche clinique en vie r\u00e9elle et des reportings patients avec les professionnels de sant\u00e9 et les associations de malades de l\u2019exp\u00e9rimentation.
\u25a0 Proposition 6 : Instaurer un travail d\u2019analyse des donn\u00e9es, de la litt\u00e9rature, des Patient Reported Outcome Measures (PROMs) pour renforcer le bon usage du cannabis m\u00e9dical et dans un second temps travailler \u00e0 un cadre pour promouvoir une recherche clinique structur\u00e9e publique et priv\u00e9e.<\/p>\n\n\n\n

4\u1d49 Enjeu : Cr\u00e9er la fili\u00e8re agricole et industrielle fran\u00e7aise du cannabis m\u00e9dical<\/strong><\/h6>\n\n\n\n

\u25a0 Proposition 7 : Cr\u00e9er les conditions de la cr\u00e9ation de la fili\u00e8re agricole et industrielle par un engagement de l\u2019\u00c9tat permettant, dans un premier temps, par les industriels l\u2019assurance d\u2019approvisionnement pour garantir la continuit\u00e9 des soins par la publication des textes d\u2019application.
\u25a0 Proposition 8 : Mettre en \u0153uvre les conditions de la structuration de la fili\u00e8re agricole et industrielle fran\u00e7aise et europ\u00e9enne en cr\u00e9ant un groupe de travail port\u00e9 par la Direction G\u00e9n\u00e9rale des Entreprises.<\/p>\n\n\n\n

5\u1d49 Enjeu : Mettre en place un cadre \u00e9conomique encourageant et soutenant la fili\u00e8re industrielle<\/strong><\/h6>\n\n\n\n

\u25a0 Proposition 9 : D\u00e9finir une tarification des m\u00e9dicaments \u00e0 base de cannabis adapt\u00e9e aux enjeux de l\u2019acc\u00e8s aux traitements et \u00e0 la prise en charge des patients par la structuration d\u2019une fili\u00e8re industrielle. La p\u00e9rennit\u00e9 de l\u2019acc\u00e8s et de la prise en charge des malades est conditionn\u00e9e par l\u2019instauration d\u2019une fili\u00e8re agricole et industrielle fran\u00e7aise et europ\u00e9enne. Les investissements industriels sont conditionn\u00e9s par l\u2019assurance d\u2019un mod\u00e8le \u00e9conomique viable \u00e0 moyen et long terme.
\u25a0 Proposition 10 : D\u00e9finir un engagement de l\u2019\u00c9tat vis-\u00e0-vis de la fili\u00e8re industrielle du cannabis \u00e0 usage m\u00e9dical port\u00e9 par le Plan France 2030.<\/p>\n\n\n\n

\u00c0 la suite de la publication de ce manifeste, la coalition CannabiSant\u00e9 attend un engagement politique fort pour mettre en \u0153uvre un cadre r\u00e9glementaire clair et p\u00e9renne afin d\u2019\u00e9viter les incertitudes li\u00e9es \u00e0 une prolongation d\u2019exp\u00e9rimentation et r\u00e9pondre aux besoins de nombreux patients en attente d\u2019une derni\u00e8re ligne de traitement. Cette action garantirait non seulement la continuit\u00e9 des soins pour les patients, mais renforcerait \u00e9galement la s\u00e9curit\u00e9 et l\u2019encadrement de l\u2019usage du cannabis m\u00e9dical dans le pays.<\/p>\n\n\n\n

<\/a><\/div><\/div>\n\n\n\n
\n
T\u00e9l\u00e9chargez le manifeste<\/a><\/div>\n<\/div>\n\n\n\n

<\/p>\n\n\n\n

\u00c0 propos de CannabiSant\u00e9<\/h6>\n\n\n\n

CannabiSant\u00e9 est un collectif rassemblant des experts de la sant\u00e9, des patients, des professionnels de sant\u00e9, et des acteurs industriels, tous engag\u00e9s pour garantir que le cannabis \u00e0 usage m\u00e9dical devienne une option th\u00e9rapeutique accessible, encadr\u00e9e et p\u00e9renne en France. Notre mission est de garantir aux patients un acc\u00e8s s\u00e9curis\u00e9 et encadr\u00e9 \u00e0 ce traitement, qui a d\u00e9montr\u00e9 son int\u00e9r\u00eat et sa s\u00e9curit\u00e9 d\u2019usage au cours de l\u2019exp\u00e9rimentation nationale men\u00e9e ces trois derni\u00e8res ann\u00e9es.<\/p>\n\n\n\n

Contact :
Cl\u00e9mence Bertrand \u2013 clemence.bertrand@nile-consulting.eu<\/p>\n","protected":false},"excerpt":{"rendered":"

Communiqu\u00e9 de presse, Paris, le 14 novembre 2024 La coalition CannabiSant\u00e9, compos\u00e9e de patients, professionnels de sant\u00e9 et experts engag\u00e9s […]<\/p>\n","protected":false},"author":2,"featured_media":197,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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